Thursday, February 16, 2012

1: 12 Ways To Keep Busy In A Waiting or Treatment Room

Too many of us spend more than half - if not ALL of our days sitting out hospitals or clinics either for ourself, or waiting on a loved one to come out of treatment. It's pretty easy to run out of things to do! Here are a list of 12 ways to never get bored again while you're sitting around. Hey, you may even start to look forward to it!

Way One: Cat's Cradle

Does anyone remember the old game Cat's Cradle? Diane Gershowitz Trivelli does! She commented on our Facebook status and said she always uses this origami with a string, if you will, to help keep her busy in the waiting room. 

A game I personally haven't played in 15 years, here is a way to re-accustom yourself with Cat's Cradle.




Now all you need is the string! I think I used to use a shoe lace. :)

Tomorrow we will post Way Two to keep busy in a waiting/ treatment room.

Lean On Lavender, The Color Of All Cancers,
Arielle

The Truth About Vitamin D



Know your (Vitamin) D- factor

Vitamin D: The “Super-Vitamin”

Vitamin D was once thought to be just another vitamin that was just as important to your health as all the other vitamins.  We know it plays a huge role in the regulation and absorption of Calcium, (that’s why you will see it in your Calcium supplements) but it’s just over the past several years that people are “doing extra D” for important added benefits...and rightly so!

The major biologic function of vitamin D is to maintain normal blood levels of calcium and phosphorus. Vitamin D aids in the absorption of calcium, helping to form and maintain strong bones. Recently, research also suggests vitamin D may provide protection from hypertension (high blood pressure), cancer, and several autoimmune diseases including Multiple Sclerosis, Diabetes, and Rheumatoid Arthritis.

Vitamin D is a somewhat “special” vitamin as well because the body actually manufactures Vitamin D from sunlight.  No other vitamin is produced in our systems.  The fact that our bodies produce it and the fact that it has such an impact on many of our bodies systems, actually puts it in the category of a hormone.  This all important “super-vitamin-y hormone” has made headlines recently because of the link that was discovered with breast cancer.

Vitamin D and Breast Cancer

It was found that a significant number of breast cancer patients, for whatever reason, had very low levels of Vitamin D.  It was suggested that increasing women’s Vitamin D level to “adequate” (35-74 ng/ml in the blood measured as calcifediol or Vitamin D 25-hydroxy) could save 65,000 women from developing breast cancer every year. A study of over 1400 women in the general population showed that over 50% of them had inadequate Vitamin D levels. (myself included)

When I was diagnosed with stage III breast cancer my Vitamin D level was 23 ng/dl! (desirable is considered to be 35 - 74 ng/dl)  A few weeks of high dose vitamin D under a doctor’s supervision, with a daily supplement intake of 4000 mg/day is keeping me in the 50’s. 

Since the breast cancer study, it has been discovered that other cancer patients as well had low Vitamin D levels (but not prostate cancer).  We are learning more and more about vitamin D and the role it plays on your immune system.  Poor immunity is related to your risk of cancer, but also is linked to heart disease, arthritis, diabetes, and Multiple Sclerosis among others.  the reason is the role Vitamin D plays in “apoptosis” or regulating the destruction of unwanted cells.  A lapse in the regulation causes overgrowth.....cancer.

It would make sense, then, to assume that it is vital you know what your Vitamin D levels are and supplement to keep them stable.  This can be done with a simple blood test called “serum 25-hydroxyvitamin D”.  This has become a very routine blood test and it is the only way to know if you are getting enough D.  With repeated tests you can tell what  “your personal” level of supplementation is in order to keep you within range.  The fact that Vitamin manufacturers are now making Vitamin D in 2000 mg sized pills tells you that people are wising up.

D2 vs D3

Vitamin D comes in two forms when buying supplements. Vitamin D2 (ergocalciferol) comes from plant sources, and Vitamin D3 (cholecalciferol) comes from animal sources.  Your body produces vitamin D3 from sunlight.  The jury is still out on whether Vitamin D2 or D3 is absorbed better. For vegans, obviously the choice is clear.

How do I get enough Vitamin D?

Naturally:  Our skin will produce vitamin D3 by exposing it to sunlight without sunscreen.  5 – 10 minutes a day 3 x week is sufficient to get adequate doses of Vitamin D in your system.  I must warn you of the Skin Cancer Foundation’s recommendations that you don’t go out in the sun without sunscreen.  (They would rather you just take a pill, thank you)



Foods:  It is hard to eat enough foods to get the levels of D you need. Foods contain, or are fortified with, the form D2 or D3. You will find D in eggs, fish and fish oil, fortified dairy products and (dare I say it?) beef liver (ugh) and cheese. Difficult for those on vegan or low fat diets, but many many foods are fortified. (D3 is the usual form in supplements, but not all are Vitamin D3)

Supplements: Here is where it gets tricky…..initially, the RDA (recommended daily allowance) of vitamin D was thought to be 200 UI/day but we now know that this amount just is not enough. The consensus from many sources is that every adult should be taking 2000 IU/day.... especially, the elderly, dark skinned people, those who live in colder climates (don’t get sunlight exposure), over weight (vitamin D is prevented from absorption in overweight persons) and those who have inflammatory bowel disease like Crohn’s that affect absorption.

Toxicity: Initially, there was not enough evidence to put a number on the upper limit for intake of vitamin D. Early studies showed that abnormally high levels of blood calcium were observed in those that took in excess of 50,000 IU /day of vitamin D.  This led the Food and Nutrition Board to establish VERY conservative maximum upper intake levels of 2000 IU/day.
Since 1997, more and more studies have been done that show vitamin D toxicity is very unlikely in healthy people at intake levels lower than 10,000 IU/day. 

Toxicity can further be avoided by taking it in conjunction with Vitamin K. When taken with Vitamin K, vitamin D is less likely to reach toxic levels.  Certain companies are now making Vitamin D with Vitamin K together.  Not much info on this, but I’m told by experts in the field that the data is there, and there will be more supplements that contain a combo of vitamin D and K in the future.

Be careful

Vitamins are not regulated by the FDA and because of that there is no guarantee that because the bottle says “Vitamin D3 1000 IU, that it contains what it states.
Pick a vitamin company that you trust. Look at their philosophy….look at who owns the company…. how long have they been around….any claims about certain products should have data to support it.  Call the company and ask questions.

Vitamins lose their potency so check expiration dates.
Look for a descriptive label…..does the bottle say just “Vitamin D”…..or Vitamin D3?
Look at the fillers….yeasts, preservatives….bulking agents, binding agents, etc….
Do they “do good” for the community?  do they donate a portion to research etc?

Bottom line

Even if you don’t like taking supplements, you may want to consider getting your Vitamin D blood level checked.  Having the right level may do more for your health than you realize.


Author Susan Gonzalez is a registered nurse, breast cancer survivor, and the creator of MOON Organics Inc. MOON organics is committed to providing organic, healthy products while helping those going through treatment for cancer. Please visit MOON-Organics.com for details.

References:
















Monday, February 13, 2012

Meet John Kaplan


Diagnosed at age 49 with a potential deadly form of lymphoma, Pulitzer Prize-winning photojournalist John Kaplan turned the lens on himself and chronicled his experience in a moving and inspiring visual journal.   Not as I Pictured
Friday, March 2 showing at Embassy Suites Hotel  1601 Belvedere Road, West Palm Beach (just West of Australian Avenue)  8:30 PM  $5 suggested donation.
John Kaplan is donating 10,000 copies to those with cancer. (Please share this with others). 


Wednesday, February 8, 2012

Pink Ribbons Inc.

Pink Ribbons Inc., is a documentary that is disparaging of the role corporations and organizations such as Susan G. Komen, play in funding breast cancer research and other operative programs.

Is Susan G. Komen digging a deeper hole? Coincidentally, the film released February 3, 2012 at the Toronto International Film Festival has only fanned the recent wildfire Komen has created for themselves.

Some are now questioning Komen's priorities. Are they more interested in corporate benefits for their partners or "racing for a cure"?

Watch the trailer for Pink Ribbons Inc.



An interview with Pink Ribbons Inc. producer, Ravida Din:


Were you surprised by the recent news [that a Planned Parenthood grant would be defunded]?
I was actually surprised! Our research focused on who gives money and how is it spent. To see a news story about why funding gets pulled and why partnerships are broken is interesting. It helps us give pause to which companies and organizations we are aligned to.
How did you all come to this project in the first place?
It all started seven years ago. I read an interesting article by Barbara Ehrenreich. She gave a very interesting perspective on the breast-cancer culture we've created today; it spoke to me. I started to read a number of articles, and eventually read Samantha King's "Pink Ribbons, Inc," which we based the film on.
What do you hope audiences take away from the film?
We're hitting theaters this weekend in Canada - starting today. I'm curious to get more of the general public response. The response online and at festivals so far is very good.  People are having more conversations about this subject.  People are not looking at the pink ribbon in the same way; we want a new debate around this issue.
What surprised you during the making of the film?
A lot surprised me. I would say that what surprised me was the lack of coordination in all of these agencies looking for a cure. Non-profits, health organizations, and cosmetic companies who get involved, all promising a cure for cancer, they're not working together to get a cure for cancer. There are no standards or questions around accountability. There is very little focus on primary prevention. The prevention work that is done is screening and lifestyle change as prevention, as opposed to investigating what causes is it in the first place.
And what do you think of all of the public response to the recent news?
The conversations are "What's wrong anyway with fundraising... isn't it better than doing nothing?" People that do participate in these events or who run at these events feel that they're doing a good thing. What the film looks at is: That's fine, but we need to dig a little deeper, ask a few questions about where the money is invested and what the outcomes are. What do we do now? The public response to this news is heartening to see. The film deals with complacency. It's important to do something.  If you don't agree with, for instance, manufacturing projects that are linked to the disease, write to companies and ask questions!
What are you hoping to do in the coming months with the film?
I think that "Pink Ribbons, Inc." will give people a larger context around the breast cancer industry -- how it contradicts the message we are sending to the public about the disease.  Simply focusing on awareness isn't enough anymore.
We want to hear your thoughts. Leave us a comment and we will make sure your opinion is heard! You can also email us anytime at info@cancershopusa.com. 
Are you following us? Follow us on Twitter @CancerShop_USA, and Facebook Cancer Shop USA. 
Lean On Lavender, The Color Of All Cancers,
Cancer Shop USA Team

Tuesday, February 7, 2012

New Hope


It is February and there is a positive energy in the air. It is the prospect of a new year. A chance to let go of the past and believe in good things to come. It is the anticipation that life will turn out how we want. It is hope. We all have hope for different reasons but at the end of the day when things don’t turn out, we dig down and assure ourselves, “There is always hope.”

Being a cancer patient in January brings a new perspective to New Year’s hope. The anticipation of the year ahead is very different to the patient and their families then to those outside the cancer world. My perspective of hope came as the caregiver for two husbands with cancer. Both of them were very sick in January and they both died in February, five years apart. I remember listening to people hope that this would be the year they lost ten pounds and finally kept it off. My husband was very thin and had no appetite. I wanted to say to them “lose the damn weight and get back to your cancer free life!”  Little by little I couldn’t relate to people in my old world before cancer, I found it very isolating. I longed to talk to other caregivers who understood my perspective.

Hope is a beautiful thing. It is a free and unlimited resource, which can be completely unfounded. I never knew the endurance of hope until I cared for my husbands. On tough days as their caregiver I privately lost sight in the beauty of hope. I didn’t know if too much hope was only denial of the disease and its progression; or if you couldn’t have enough hope, because the more positive energy the better. I wanted something concrete to keep my faith. I needed a good scan or blood test result. I remember our oncologists, families and friends constantly promoting hope to my husbands. However, when things did not go as anticipated I was the only one there in the middle of the night picking up their emotional pieces. On those occasions they relied on me to restore their hope and although I was drained I realized it was a big part of being a spouse. On the days when my hopes were down I would witness their strong will and this in return restored mine.



Hope is a relative thing. When my first husband was diagnosed with leukemia we hoped the chemotherapy would kill the cancer. When it didn’t we hoped a bone marrow donor match would be found. When it wasn’t we hoped for a stem cell harvest, not enough healthy cells left for that. Then he had cardiac death and we hoped a defibrillator implanted in his heart would stop the next one from killing him. When he got an extreme intestinal infection we hoped the antibiotics would stop it. When they didn’t we hoped he wouldn’t linger.

Hope is a powerful thing. When my second husband was told by his doctors there were no more treatments for his colon cancer which had spread to his lungs and vertebrae he sought alternative treatments. While sick he traveled to Germany, California and yes Tijuana for juice, hoping for a miracle. When this didn’t work and the cancer started growing into his spinal cord we hoped the huge dosages of pain medication would keep him comfortable, but not stop his respiratory system. The drugs did stop it and the paramedics put him on life support. When I took him off life support I hoped it was the right thing to do.

Hope is a necessary thing and that is one of the biggest lessons I learned from caregiving cancer patients. When I lost sight of it because of exhaustion and frustration it only made everything harder to endure and my fears more in control. One of the challenging parts of caring for a loved one with cancer is the constant unknowns each day whether it is medical, emotional, financial or family. There is no proof that my hope ever leads to my desired outcome in any circumstance. I realized my hope was about being able to handle the outcome. It was the act of hope that fueled my perseverance during those trying days. Like burning faith but that is a whole other topic of discussion for another day.

~ Susan Parker

Susan was a guest on this week's episode of Cancer Connect. Listen/Download/Subscribe Here!






Monday, February 6, 2012

Cancer Connect Episode 1

The moment we have all been waiting for!! EPISODE 1 of Cancer Connect is now LIVE! Listen to it here and please subscribe to our feed to be informed of more upcoming episodes. Best!


NEW! Cancer Connect Podcast

STAY TUNED!

Cancer Connect (to be released this week), is a weekly short through inspiration and motivation. Feel free to listen at home, or work to the wonderful people who have become innovative during the healing process and would like to share their journey with you. We will also be interviewing caregivers to help express the anxiety and stress they undergo with little to no support. Our goal is to change the way people think of cancer and bring a new resource into the homes of that many more patients, caregivers and professionals.



Our first guest will be recent blogger Susan Parker. We are so excited to share this new journey with our followers and we hope you will enjoy!

Lean On Lavender, The Color Of All Cancers,
Cancer Shop USA Team